Helping you to cope

As we all know, there is a huge range of potential side effects which might affect your child.  Whilst each child is unique in how they might react, there are definitely common threads. So in this section we want to tell you how other parents have managed to deal with the various side effects in the hope that other people’s experience will help you through.  Don’t forget to contact us to share any great hints or tips!

But it is not just about the side effects. It’s about how you are feeling, knowing you’re not the only one struggling with life, relationships or anger issues. One parent of a child with cancer recently wrote on her blog how she was out shopping one day and noticed that everyone around her was smiling, laughing, getting on with their lives and she suddenly wanted to scream at everyone around her, ‘what are you laughing at? Do you have any idea what I’m going through?’ and the anger was overwhelming.  I bet that sounds familiar to many of you reading this, but for those who have not been in our situation, it sounds crazy. At you can chat on the forums, and hopefully we’ll have some ideas on how to cope with the emotional stuff here, too. All ideas welcome, let us know!

There’s a great new leaflet published by the East Midlands Children and Young Person’s Cancer Service aimed at helping parents through the high dose steroid treatment that can cause real issues.  Dexamethasone – a guide for parents

Hickman lines and ports
We’ve been working with the East Midlands Cancer Network on a film about living with central lines. It’s a film for parents, by parents (!) and featuring families!  We are so proud of it because it will allow parents to have a fully informed choice before the central line is inserted. Some hospitals don’t tell families that there are two different types of central lines available on the NHS, and that’s what we really want to address here, because it has such an impact on daily life for the whole family, not to mention psychological issues for the child which can often go hand in hand.